Tilt
1 years ago
CW: Medical Discussion
latest #17
Tilt
1 years ago
Alright, so by now I'm sure it's pretty obvious that I haven't been around as much since last October when I got the news about my biological father.
Tilt
1 years ago
Well that prompted me to go ahead and get a check-up done and all my usual bloodwork run again. All of which came back normal except for one thing, my red blood cell count was elevated; very elevated.
Tilt
1 years ago
This prompted my general practicioner to schedule appoints for both a lung specialist and hematologist. And the last six months have been a number of different appointments in which I have started oxygen therapy and been having blood drawn each month. Roughly 500 ml each time to get it to a normal count.
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Tilt
1 years ago
My blood pressure crept up, which then caused me to begin taking medication for it, along with the oxygen-therapy it has helped a lot with the fatigue and exhaustion that I had been feeling since August; which I had just attributed to continued burn-out.
Tilt
1 years ago
However, yesterday after having the tests run again and finding that my red blood count was elevated even higher than last month; along with other tests, my hemotologist made a formal diagnosis of Polycythemia vera.
Tilt
1 years ago
A cancer which causes the bone marrow to make too many red blood cells.
beachcryptid
1 years ago
oof /hugs
{BG}
1 years ago
Tilt
1 years ago
So that's kind of where I've been lately. And still not 100% I'm really past the initial shock step from the news. From what I was told it's not necessarily life-threatening with care, but will definitely affect quality of life in time.
{BG}
1 years ago
Ooof
skipthedemon
1 years ago
I'm so sorry. I hope you get the very best care possible
Tilt
1 years ago
The care is pretty much sleeping with a bi-pap and having them draw blood once month. Not too bad but a little tedious since I have to drive an hour for the phlebotomy.
Toastymallow
1 years ago
Tilt
1 years ago
Pleas continue to be patient with me, but also my offer still stands that if anyone ever needs someone to talk to or if there is anything I can ever do to help with something you're going through let me know.
Tilt
1 years ago
You can DM me, message me, I'll give my email and phone to anyone that wants it. This won't change anything other than placing a few limitations on what I can physically do.
{BG}
1 years ago
Tilt
1 years ago
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