ᴇᴠɪᴇ
4 years ago
It has been a long day full of social interacts and people telling me things about themselves that I didn't invite. So now I'm in a sideboob tanktop and yoga pants with my boy hair and heavy eyeliner and I call this look "suburban joan jett".
latest #111
ᴇᴠɪᴇ
4 years ago
also I don't know how to handle it when someone else pays for my meal.
ᴇᴠɪᴇ
4 years ago
but I got to see a friend I haven't seen in two years and she did everything she could to make me feel comfortable, and then I found a house for my prickle's cage.
ᴇᴠɪᴇ
4 years ago
Also going to talk a little about my lunch and about being "out" about being autistic.
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ᴇᴠɪᴇ
4 years ago
The girl I met up with, I've known for y E A RS. She's a genuinely nice, compassionate, funny, cheerful person. I haven't seen her in ages like I said, and it was like we hadn't missed any time at all. (Other than me being tired as fuck. And - well, autism talk next.)
ᴇᴠɪᴇ
4 years ago
I tend to shred anything paper on the table at restaurants. Straw casings are not safe from me. She sat there watching me roll and roll and roll and tear mine up when it was too worn out to roll anymore --
ᴇᴠɪᴇ
4 years ago
and then she passed me hers.
ᴇᴠɪᴇ
4 years ago
The only other person to ever do that is my husband.
ᴇᴠɪᴇ
4 years ago
I cried about it on the way home because it's seriously the most understanding thing anyone's done since I started letting people know I'm autistic.
ᴇᴠɪᴇ
4 years ago
AUTISM TALK TIME.
transilience
4 years ago
HUGS
ᴇᴠɪᴇ
4 years ago
People have been so
ᴇᴠɪᴇ
4 years ago
shitty
ᴇᴠɪᴇ
4 years ago
to me
transilience
4 years ago
I am so glad you got that recognition!
transilience
4 years ago
and that she was kind about it!
ᴇᴠɪᴇ
4 years ago
And the autism diagnosis itself was fucking harrowing. Like. I hope something terribly unfortunate happens to that psychiatrist who did my initial evaluation.
ᴇᴠɪᴇ
4 years ago
I don't want her dead or like destitute. Just. Miserable for a few weeks.
ᴇᴠɪᴇ
4 years ago
And people started treating me like I'm dangerous. Or an alien. Or fragile.
transilience
4 years ago
:///////
ᴇᴠɪᴇ
4 years ago
When really, nothing's different between me and others, socially.
ᴇᴠɪᴇ
4 years ago
I mean other than what's happening in my head which is the constant worrying / self-monitoring / analyzing every word
ᴇᴠɪᴇ
4 years ago
And people who aren't shitty try to be over-nice / over-compassionate / "Cookie Woke". Telling me "Oh you don't need to mask" or like. Kid gloves with everything.
transilience
4 years ago
urghhh
ᴇᴠɪᴇ
4 years ago
1. Yeah. I need to mask. If I stop masking, you will be uncomfortable and I will know it.
ᴇᴠɪᴇ
4 years ago
You don't know what you're asking.
transilience
4 years ago
that's so-- ugh
ᴇᴠɪᴇ
4 years ago
2. S...top. I'm not stupid, I'm not broken. I'm just anxious and awkward.
ᴇᴠɪᴇ
4 years ago
transilience: IT REALLY. IS.
ᴇᴠɪᴇ
4 years ago
And yyy it was really validating.
ᴇᴠɪᴇ
4 years ago
What my friend did, I mean. ;.;
transilience
4 years ago
like! it's not their business how you choose to cope with interacting with them!
ᴇᴠɪᴇ
4 years ago
yes
ᴇᴠɪᴇ
4 years ago
I have this one friend who consistently interrupts me to tell me I don't need to mask
ᴇᴠɪᴇ
4 years ago
and I'm like. :\ Please. Let me get my sentences out.
transilience
4 years ago
oh my god
ᴇᴠɪᴇ
4 years ago
It's not really on the same level but ISN'T IT as taking control of a person's wheelchair without their consent.
transilience
4 years ago
like, no, that's not trying to make you feel at ease! that's about what THEY need from you emotionally
ᴇᴠɪᴇ
4 years ago
I realized she's trying to help and make me more comfortable and that it has to do with her own discomfort
transilience
4 years ago
yeah
ᴇᴠɪᴇ
4 years ago
YES
transilience
4 years ago
she wants to feel like she can just magically understand you unfiltered
ᴇᴠɪᴇ
4 years ago
problematically
putting a person with autism in a position of having to do emotional labor because of their autism
transilience
4 years ago
and that you're never uncomfortable around her
ᴇᴠɪᴇ
4 years ago
is kind of horrible
transilience
4 years ago
and i'm sorry, lady, it's called a disability for a reason
ᴇᴠɪᴇ
4 years ago
yeah
ᴇᴠɪᴇ
4 years ago
I mean. I'm still struggling with the diagnosis, myself. I was told for a long time I just have social anxiety disorder and if I just really work at it, someday I will be all better! Normal! Like all these awesome people who can function in groups and loud sounds!
transilience
4 years ago
don't tell someone they don't ~need~ to do a behavior when they CLEARLY DO
transilience
4 years ago
uuuuuugh.
ᴇᴠɪᴇ
4 years ago
So being told that I'm never going to be able to scale that hill is horrible, and then being confronted by other people who are uncomfortable with me specifically because of a thing I can't change
ᴇᴠɪᴇ
4 years ago
but they're people who like me
transilience
4 years ago
yeah that's SUPER shitty
ᴇᴠɪᴇ
4 years ago
And yeah - I have this one friend who's not good at all with people, and masks heavily
transilience
4 years ago
and like, the point of an autism dx is so that you know what the actual problem is, so you can figure out more effective ways to live your life
ᴇᴠɪᴇ
4 years ago
she writes about it a lot, talking about how people tell her she doesn't need to mask and she's just like. "Yes. Yes I do. Because if I don't, I stim, I stare, I twitch, I panic."
transilience
4 years ago
uuuuuuugh :-(
ᴇᴠɪᴇ
4 years ago
"And no one really wants to see the ugly autism."
ᴇᴠɪᴇ
4 years ago
yes yes yes precisely thank you ;.;
ᴇᴠɪᴇ
4 years ago
the label has helped me get the right treatment from doctors.
transilience
4 years ago
and -- yeah
ᴇᴠɪᴇ
4 years ago
It helped me find a therapist who specifically works with autistic adults who didn't have social skills training as kids.
transilience
4 years ago
so people in your life can SUPPORT YOU MORE EFFECTIVELY, THAT ONE FRIEND.
ᴇᴠɪᴇ
4 years ago
(...Or who have C-PTSD.)
ᴇᴠɪᴇ
4 years ago
yes
ᴇᴠɪᴇ
4 years ago
What's been wild is people I've known for years or family members who try to connect with me now, but get put off because I'm just a little too autistic for their tastes
ᴇᴠɪᴇ
4 years ago
I lose the ability to mask as well when I'm stressed because meltdowns occur in stressful environments or as the result of trauma, and COVID has been nothing if not one big stressor. So I'm constantly bouncing my leg or ripping paper or playing with my rings or losing my ability to talk or interrupting etc etc
ᴇᴠɪᴇ
4 years ago
people don't really want to deal with that
ᴇᴠɪᴇ
4 years ago
(What's similarly wild is I don't want to be doing the thing I'm doing)
ᴇᴠɪᴇ
4 years ago
(But I can't make it stop)
ᴇᴠɪᴇ
4 years ago
Anyway all that to say, not commenting and just handing me her straw paper was so wonderful and I love her.
ᴇᴠɪᴇ
4 years ago
transilience: and thank you for reading and commenting and sharing a little. It's shit to know it's a shared experience but it's also validating.
transilience
4 years ago
back sorry had to attend to the cat
transilience
4 years ago
you are very welcome! I am everyone's Crotchety Autistic Auntie
transilience
4 years ago
HAVE you read the murderbot diaries, btw?
ᴇᴠɪᴇ
4 years ago
Iiii have not!
transilience
4 years ago
I can hook you up with the first four volumes, quiet-like
transilience
4 years ago
they give me a loooooot of Autism Feels
ᴇᴠɪᴇ
4 years ago
>.> I'm reading the synopsis and uh. I just finished Dread Nation and am looking for something new. Might just quiet-like accept those. >.>
transilience
4 years ago
(Autism Feels(tm) is my go to term for fictional stuff that's like. ostensibly not Actually About Autistic Characters, but WHOO do they resonate for reasons)
transilience
4 years ago
one moment!
transilience
4 years ago
epub or mobi?
ᴇᴠɪᴇ
4 years ago
(Always here for non-male sci fi authors anyhow)
transilience
4 years ago
(oh heck me too)
ᴇᴠɪᴇ
4 years ago
ummmMMMMmM whichever goes on Kindle
ᴇᴠɪᴇ
4 years ago
sobs i'm a luddite
ᴇᴠɪᴇ
4 years ago
and tbh the whole AI everyman / learning humanity arc in a lot of sci fi is "Autism Feels". ;.;
transilience
4 years ago
YES IT IS
ᴇᴠɪᴇ
4 years ago
Bicentennial Man (IDR the book's name), Data and Seven of Nine in Star Trek, etc.
ᴇᴠɪᴇ
4 years ago
thank you much!!
transilience
4 years ago
welcome! I need more people to screech about them with :-D
transilience
4 years ago
All Systems Red is the first one, and there's a sequence fairly early on that's... literally "you don't need to mask!"
ᴇᴠɪᴇ
4 years ago
well every time I vanish to my hammock I read so. SOON >:3
ᴇᴠɪᴇ
4 years ago
...ahaha. GreAt
transilience
4 years ago
ᴇᴠɪᴇ
4 years ago
"Thanks, friend. I'll keep that in mind."
🦔🌸🦔🌸🦔🌸
ᴇᴠɪᴇ
4 years ago
transilience
4 years ago
ᴇᴠɪᴇ
4 years ago
AHHHHH
ᴇᴠɪᴇ
4 years ago
STEALS
ᴇᴠɪᴇ
4 years ago
transilience: I read the first chapterrrr i see what you mean because daMn sensory overload right there with the emergency channel / people talking at the main character
ᴇᴠɪᴇ
4 years ago
it's very good so far, I'm going to keep on keeping on with it, thank you
transilience
4 years ago
YAY I'M GLAD YOU DIG IT
ᴇᴠɪᴇ
4 years ago
transilience
4 years ago
murderbot: pls i just want to lie here and watch soaps and regrow my organs in peace
ᴇᴠɪᴇ
4 years ago
...mood tho
transilience
4 years ago
right???
ᴇᴠɪᴇ
4 years ago
Murderbot's living the dream from the perspective of someone with a neurotypical husband. :|
transilience
4 years ago
hahaha sob
ᴇᴠɪᴇ
4 years ago
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